Notice: Coronavirus Info. We continue to have issues with our contact forms, please email head.office@fmauk.org
The Great Run Solo Challenges
From the organisers of the Great North Run, you can walk, jog or run at any pace comfortable for you.
April Accumulator Challenge - Go the Egg-stra Mile
Complete 16 runs or more in April 2021 to complete this challenge. There are four optional distance challenges available for those looking for a more demanding challenge
FMA UK Stamp Appeal
FMA UK still receive donations from our stamp appeal and we are regularly asked if the collection is still ongoing. It is still accepted and the details for it are below.
Send to:
FMA UK Stamp Appeal
10 Chestnut Avenue
North Walsham
Norfolk, NR28 9XH
Please trim no more than 1 cm around each stamp. Avoid damaging perforation when trimming. British and foreign stamps accepted.
December 2020 update from Nigel at our stamp appeal
"I am still receiving donations of stamps through the post and implementing a 'Covid Secure' process by quarantining all mail received.
I am aware most charities have had to cancel a lot of traditional fundraising events this year, but the stamp appeal is something which has continued, with some charities seeing an increase in donations."
Katrina Irapah: My experience with fibromyalgia
13 years ago, my life changed forever. I was an 11-year-old girl beginning her life at secondary school which was already a big transition as it is in every young girl’s life. However, it was not the only change in my life, in 2008 I had developed symptoms of chronic pain. I was left with no understanding or answers as to what this pain was, how to make it better or why this was happening. I was then diagnosed with chronic pain syndrome 4 years later in 2012 although this was a diagnosis t it is where I lost a lot of my hope. Knowing there was no cure or very much knowledge to this unbearable, excruciating pain that I was experiencing 24/7 at such a young age was soul destroying. It was only till early last year that I was further diagnosed with Fibromyalgia.Steph: My experience of fatigue
The article below was written by Steph and sent in to us about her experience with fatigue.
"Everyone gets tired. Pain is a part of life. Your forgetfulness might be age or stress related. Funny how everyone seems to have fibromyalgia these days....
Are these sentences ones you’ve heard since your diagnosis? Do you struggle to explain your symptoms to people? If so - me too. I think it’s easy for people to discredit a pain they’ve never felt, or assume tiredness is a natural occurrence. Fatigue and being tired aren’t the same thing, but that’s not always easy to explain, is it?
As a mum, I try to liken my chronic fatigue to that of pregnancy fatigue, it’s the only analogy that seems to do it any justice, however if you’re trying to explain this to someone who’s never experienced pregnancy, that won’t resonate either. So here’s another depiction. Imagine your limbs are laden down with lead, then imagine trying to run through treacle with said limbs, imagine living your life in slow motion and no matter how much rest you get, you’ll never get enough to speed up. Does that sound more accurate?
Anxiety and Pain of Fibromyalgia Patients during the COVID-19 Pandemic
- Has the COVID-19 pandemic become a source of anxiety?
- If so, how is that COVID-19 anxiety connected to fibromyalgia pain?
The study recruited 58 participants with the help of Fibromyalgia Action UK, among other chronic pain non-profit organisations. For 10 days, participants completed an online survey, asking what, if any, aspects of the COVID-19 pandemic evoked feelings of anxiety. They then rated how strong that anxiety was alongside of their fibromyalgia pain.
Sad Passing of Martin Westby
More Articles...
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
Trustee meetings are held monthly via Skype and last about 2 hours. There is an annual meeting that coincides with our group leaders’ meeting over a weekend.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
We are delighted to announce that our recent assessment for The Information Standard has been successful and we continue to fulfil the criteria for using the TIS logo on our publications.
The rigorous process that has to be in place ensures that up to date evidence is used and presented to people in an appropriate way. The process is ongoing and requires much diligence by everyone involved.
We would like to thank everyone who has worked on our publications or sent in their comments and suggestions for improvement
Important Notice‼️ | At the end of March, our JustGiving Text service which allows you to donate using your phone will be ending. Instead, you can now take advantage of our new Text service with Donr. To make a donation, text 'FIBRO' to 70085 to donate a default £10. This costs £10 plus a std rate msg.
Alternatively, you can opt to give any whole amount up to £20, by texting Fibro + the amount you wish to donate, e.g. FIBRO 5 to donate £5.
Please share to make our followers aware of our new text donation arrangement.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
