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John's Stammers cycle marathon for his Mum and for FMA UK
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- Category: General Information
- Published on Wednesday, 24 May 2017 18:00
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John Stammers from Stanford-le-Hope will cycle in the Annual Thurrock Cycle Marathon on 4th June to support Fibromyalgia Action UK because his mother lives with fibromyalgia. Fibromyalgia is an incurable condition that causes widespread body pain, extreme fatigue, brain fog and other debilitating symptoms. The cause for this condition is unknown and the treatment options are limited.
John told us: ‘’The main reason this charity means so much to me is because about 3 years ago my mum was diagnosed with Fibromyalgia, this was after suffering with the symptoms for about 4 years prior to the diagnosis. She often suffers with many of the symptoms presented by Fibromyalgia such as: fatigue, fibro fog and muscle pain. There are also other family members and friends that suffer from Fibromyalgia. More research is needed to diagnosis this condition quicker and treat it more effectively as currently there is no cure. By donating to my just giving page, you can help sufferers and their families in adapting to a life with this condition’’.
John’s mum said: ‘’Fibromyalgia isn't a condition that just affects the patient. It affects family, friends, work and home life. I have gone from full time work to part time work just so I can cope a bit better with it. My family suffer because of my pain, tenderness and frustration. A lot more research is needed to understand and treat this condition.’’
To donate to John’s JustGiving page visit
https://www.justgiving.com/fundraising/JohnCycle21
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
