APPG
Initial Launch of APPG
- Details
- Category: APPG
- Published on Monday, 11 September 2006 15:46
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Launch
The All Party Parliamentary Group on Fibromyalgia was officially launched on March 13th 2001 at Portcullis House, Westminster.
The All Party Parliamentary Group on Fibromyalgia was officially launched on March 13th 2001 at Portcullis House, Westminster.
Nick Palmer, MP for Broxtowe, chaired the meeting and said there were 2 main objectives for the APPG.
1. To make all MPs aware of FM and its problems (so far 80 MPs have signed up for the APPG)
2. To encourage research into the diagnosis and treatment of FM.
2. To encourage research into the diagnosis and treatment of FM.
However,
money for this won’t come automatically because of the APPG but it can
influence debate. There will be a motion in Parliament urging MPs to
sign and get more research etc.
Yvette
Cooper (MP for Castleford), Minister for Public Health, said that too
little is known and there is too little awareness of FM. We know that
1% are affected and how distressing it is. The APPG will have an
impact on the NHS by 1) Research 2) Causes 3) Treatment 4) How to
manage it 5) How to spread support. The General Medical Council will
support high quality research projects. At present there are none for
FM but there is a task force for self management programmes for chronic
illnesses. NHSdirect is trying to spread best practice and the need to
know what information could be provided. The NHS and DHS need to learn
from patients (as with ME in the past) which is the best way forward.
There is no miracle cure. The new electronic library for Health will
provide access to reliable information.
In
summing up Yvette said that the APPG has a huge agenda. In her
experience the most successful APPGs focus on one issue at a time. You
have to decide what you want to achieve and what would help most –
whether it is to raise awareness generally or create a benchmark for FM.