Articles
Dana's story: Why I am fundraising for FMA UK
- Details
- Category: General Information
- Published on Monday, 26 October 2015 14:29
- Hits: 5397
I am raising money for Fibromyalgia as I am in the process of being diagnosed with this horrible illness. Fibromyalgia can be similar to Multiple Sclerosis, Lyme disease, Lupus and rheumatoid arthritis. Often, fibromyalgia will run alongside these debilitating illnesses making It very hard to diagnose. As it stands I am not fully aware of the extent of what I have but none the less I feel the need to raise awareness for fibromyalgia.
Fibro can vary. Some can be wheelchair bound; others feel constant pain in their bodies, like fire running through the veins and nerves. Constant headaches, nerve twitching and tremors only scratch the surface with what this illness does. There is no cure to date. Medications help control the pain, but, there is always pain and a lot of it. A fibro sufferer is ill and so tired every single day, insomnia keeps us up at night. Loneliness and sadness is often with us as people find us hard to relate to. We may constantly speak about our pain, struggles and confusion. Trying to reach for a little bit of normality, but, this is a struggle to us.
I want to raise awareness so friends and families will understand more our struggles.
I want more research so a cure can be found. This illness takes away person’s character and enthusiasm for life making it hard on people around us but mostly making it hard on ourselves to accept what we have. Age does not come into the equation with fibro. It can happen anytime to anyone. I suffer from constant pains, twitching and migraines, fatigue but insomnia, but these are just a few symptoms. My list grows every day. Please help cure this illness and bring back the lives it has stolen.
To donate to Dana’s JustGiving page visithttps://www.justgiving.com/Dana-Looney/
Highlights
.png)
.png)
.png)
.png)
.png)
Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
