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Jill's head shave for FMA UK
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- Category: General Information
- Published on Monday, 24 October 2016 12:51
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Jill Liman will shave her head to raise funds for FMA UK and to raise awareness about fibromyalgia. Jill has been suffering with fibromyalgia since her teenage years, but has been diagnosed only 4 years ago. Fibromyalgia causes fatigue, pain and sleep problems so bad that Jill had to take early medical retirement from the Tesco store she working for.
Jill tells us how she copes with the condition: ‘’Every day is different, I am telling to myself that I will get up and do something around the house. However I f I have a bad night, which happens most of the time, I am unable to get out of the bed. My legs don’t want to move and my back and arms ache’’. Jill’s says that her husband, Salih, looks after her well. ‘’I cannot do everyday tasks, like cooking and cleaning. My husband does it’’. She adds: ‘’having this condition at the moment makes me so tired, I just want to stay in bed and sleep forever. Sometimes I don’t see anyone for days- just my husband and our two dogs. My friend, Rosy, helps a lot. She helps me out of bed and she takes me shopping and out to girly coffee or tea together, which is nice’’.
Jill’s head shave will take place on the 13th November in Sible Hedingham (Colne Valley in Braintree District of Essex) in Swan Street Barbers.
To donate to Jill’s JustGiving page visit:
https://www.justgiving.com/fundraising/Jill-Limanhavingherhairshavedoff
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
