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Ben Keane's Rochdale 10K run for his Mum
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- Category: General Information
- Published on Friday, 22 September 2017 22:02
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Ben Keane will run the 10K run on the 8th October and he has raised already almost £200. Ben told us: ‘’My mum Caron was diagnosed with Fibromyalgia around 4 years ago after suffering for years with what was unknown at the time until a final diagnosis by her GP. She battled on but had to give up work 2 years ago. That was the end of 30 years of hairdressing job she loved. It also meant the end of most of her social life as it is often difficult to compose your thoughts and speech due to fibro fog. The condition affects her both physically and mentally including memory loss, the inability to follow a conversation, joint pain, insomnia and regular fatigue where even to go up the stairs is painful and like running a marathon.
There is no cure for the condition and very little is understood about it. My mum is currently on medication which only masks the symptoms. That's why the money going to Fibromyalgia Action UK is so important to assist in research and to help the charity to continue to help sufferers around the UK and campaign to ensure treatment is no longer a post code lottery which is currently the case.’’
To donate visit Ben’s JustGiving page: https://www.justgiving.com/fundraising/benkeane-lyons
On the photo: Ben with his mum on her wedding day
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
