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Sophie Halle-Richard's Great Manchester 10k Run for her Mum
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- Category: General Information
- Published on Friday, 27 April 2018 16:41
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On Sunday the 20th of May Sophie Halle-Richards will be running the Great Manchester 10k Run for Fibromyalgia Action UK because her mum lives with fibromyalgia. Sophie told us:‘’Following several years of undiagnosed and widespread pain, my mum was diagnosed with Fibromyalgia. At that time and still to this day, we know very little about the condition or its implications, making the symptoms very hard to articulate to friends and family.
Fibromyalgia is a long-term condition that causes pain all over the body, and includes constant fatigue, cognitive difficulties and many other debilitating symptoms. The actual cause of fibromyalgia has not yet been found.
Currently, there is no cure for Fibromyalgia and treatment primarily aims at treating symptoms opposed to finding a long-term cure. Charities' like Fibromyalgia Action UK are paving the way to help improve the lives of sufferers by increasing awareness, and access to treatments for Fibromyalgia across the country. Any contributions will go a long way in funding future research and treatment as well as improving the lives of current sufferers. Any donations would be greatly appreciated!’’
To donate visit Sophie’s JustGiving Page:
https://www.justgiving.com/fundraising/sophie-halle-richards
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Our professionally printed Information pack on fibromyalgia can be found here to view. You will also receive a free copy on request. We also have a booklet for young people with fibromyalgia that you can obtain on request and will be on the website soon.
FMA UK has recently changed some of its telephone numbers for helplines and groups. Please check here for more information on the New Contact Numbers if required.
FMA UK offers a range of support and information including:
- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
The charity is run by volunteers, most of whom have fibromyalgia.
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
