Articles
Gudrun Berry: My experience with fibromyalgia
- Details
- Category: General Information
- Published on Wednesday, 20 November 2019 15:09
- Hits: 3101
I was always a very active and busy member of the community, having no problems multi-tasking and juggling various things.
I was less and less able to function and fulfil my work requirements. The process took over one year and ended with a disciplinary hearing, where I was told in no uncertain terms that there are only two ways: either I'm ill and then need to be signed off work or I'm not ill and have to do my work as required. My GP was very helpful and also the Occupational doctor from the HR department.
It has taken me several years to come to terms with the slow pace of life and the narrowing of activities. After several operations because of my arthritis I am now content with my life, trying to manage my pain without medication. I live for the moment and have accepted the changes in my life. Having more time and doing things slowly and more aware has changed me profoundly. I had to re-evaluate the priorities in my life and despite the restrictions and the pain, I have never been more content and fulfilled.
Although it has been a cruel and draining journey it has enabled me to turn my life around and lead it in a more meaningful and happier way.
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
