Articles
Fran's Sponsored Silence
- Details
- Category: Fundraising
- Published on Thursday, 31 March 2011 10:38
- Hits: 7506
My Name is Fran Rhodes I am 46 and have been a sufferer of Fibromyalgia for about 4 years, along with CFS, TMJ, IBS, sinus, urinary problems, compressing hips, diabetes, depression etc. I left work end of 2008 and have been struggling against this illness ever since, it's a debilitating illness which has virtually taken over my life, but I am not prepared to let it beat me yet. I am looking to do 4/5 hours Sponsored Silence in aid Fibromyalgia Awareness Day on 12 May in either our local doctors waiting room or a shop forecourt whichever will say yes to me.
I have a large amount of people on my Facebook site that have joined together over the world who are joint sufferers it has become a bit of a focal point where we can chat, moan and groan and of course have fun too. Life is too short to be miserable and I try to smile as much as I can and my theme tune is 'Always look on the bright side of life' the Monty Python tune.
I am lucky to have a supportive partner & family but still have my down days when I feel like I am all alone, but I know I'm not. But my greatest asset it my sense of humour which I know has got me through.
My contact details for the sponsored silence are www.justgiving.com/Fran-Rhodes/ and I welcome fellow sufferers to come and meet many other like minded people on Face Book under Fran Rhodes. We laugh, we chat, we moan and groan and give support to each other, and when you feel alone and think you are on your own there is usually someone online 24/7 to chat to.
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- National Helpline 0300 999 3333 (10am - 4pm Mon - Fri)
- Benefits Helpline 0300 999 0055 (10am - 12pm Mon, Wed and Fri)
- Complimentary information booklets for doctors and other professionals (fully referenced)
- Books and videos
- Website Contacts with legal specialists
- Conferences
- Local support group and helpline contacts
If your Health Care Professional needs some education in fibromyalgia you can request that an FMA UK Health Professionals Pack is sent out to them. All we need is the name of the Health CareProfessional and the address of their practice. We will then send a pack to their surgery addressed from us to them.
You can request a medical pack using this form.
You can find a Support Group near you by contacting the Regional Coordinator for your area. If there does not happen to be a support group near you then maybe you can join with some other members and set one up. Support groups provide a social benefit as well as the opportunity to share tips on coping with fibro. They come in all shapes and sizes and we are often told how they have helped people.
